... was born six weeks early with chronic lung disease, pulmonary hypertension, a tethered spinal cord, an imperforate anus, and an extra chromosome. He's undergone many surgeries, including critical intestinal surgery, a tracheotomy, g-tube placement and just this month, surgery to correct a life threatening bowel adhesion. He’s spent more time in the hospital than out of it. We were able to discuss Parker's needs, where support is failing and what can possibly be done to direct the government in a direction that will keep providing and supporting those with special needs.
But speaking of support, I was so touched by the way that this family has completely rallied around Parker in all ways: Grandpa willing to sell everything he has literally to support and sustain Parker's life. Loving sisters and brother who not only show affection, which would be expected, but know how to feed Parker through his tube, handle his oxygen apparatus (I'm trying to use big words here to cover up the fact that I don't know the medical terms), hold him and snuggle him, all while being very careful not to injure or cause pain from his recent surgery sites. I was very touched. And again, though you would thoroughly expect siblings and parents to love any child, brother or sister, their dedication to Parker's well-being was awesome and inspiring. An incredible family...parents, grandparents and children.
The medication, supplies, and equipment to assist Parker have cost a literal fortune for this health-insured family. What isn't realized by many, is that even though you have adequate or even superb health insurance, should a catastrophe occur such as a permanently disabling accident (as in the case of my brother-in-law) or a child born with severe health issues, insurance coverage max's out quickly. Surgeries and hospital stays add up to the multiple thousands of dollars.
Advertising revenue that is earned while playing will go directly to Parker for his ongoing care. Every little bit helps! You can also follow Parker's story at PrayingforParker.
Now...since this is a blog for Diviine ModesTee, I must add that I wore this skirt: